12th/13th/14th May; Making Our Invisible Visible: Why Awareness is SO Important.

I didn't come up with the title for this one, 'Making Our Invisible Visible' is the tag line for the charity EDSUK. I think it's a very important statement and something that needs drawing attention to; not all disabilities are visible.  I am lucky in the fact that, so far, my EDS hasn't affected me … Continue reading 12th/13th/14th May; Making Our Invisible Visible: Why Awareness is SO Important.

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8th/9th/10th/11th May, Spoon Theory; Explaining Chronic Fatigue

I'm a few days behind with this blog (which is why this post is for 4 days) so I thought I'd explain why; I've had a serious lack of spoons. Let me elaborate... Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME) is one of the more disabling aspects of EDS and, unfortunately, it's … Continue reading 8th/9th/10th/11th May, Spoon Theory; Explaining Chronic Fatigue

5th May, Being a Stripey Musician, Part 1: Migraines

Although musical performance has always been a big part of my life, my relationship with it has been far from straight-forward. The first instrument I started learning to play was the Piano at around the age of 4. My family moved from Aberdeenshire to Derbyshire on 4th July 1999 and my Dad was in the … Continue reading 5th May, Being a Stripey Musician, Part 1: Migraines

2nd May, The Long Road to Diagnosis, part 1

On 4th April 2015, my mum and I travelled down to London for an appointment at the Hypermobility Clinic at UCLH. The appointment was with Dr Nicola Ambrose and, after about 10 minutes of talking to us and running through my Beighton score, she gave me the diagnosis I had been waiting for for nearly a … Continue reading 2nd May, The Long Road to Diagnosis, part 1